My Life Experiencing with Disability

Hi Everyone!

I know I have been away for a while but I am trying to get back in full swing as quickly as possible.

First, I must warn you in advance that this is a long journey, so I will be doing it is parts as not to bore you too much.

In the past, I have written of working with or adopting disabled individuals but now I will be writing as a person with a temporary disability involving severe pain, numbness and tingling.

I had rotator repair surgery done twice in my right shoulder. It started out of the blue about 3 years ago or so. My fingers started tingling whenever I tried to grasp anything especially the steering wheel of my van.

I did not pay much attention to it at first. I just figured I was grasping the wheel too tight. It continued to get worse. So a couple of months later, strangely, I started having severe cramps in the back of my legs especially when I would wake up in the morning and gave myself a good stretch. They would be so hard until it would bring tears to my eyes and leave a large blue mark.

I went to the doctor more for the cramps than anything else. The tingling by this time was turning into numbness. My feet were starting to get extremely cold especially at night, until, I had to layer them to even start to get them warm. Wrapping 5-6 times with bath towel has become the norm.

The doctor diagnosed me with “Neuropathy and put on medication to manage the pain associated with the tingling and numbness.

So for almost two years later, the problem had worse instead of better. I had gone to several different doctors, each referring me for a different test, to try to find out why there was pain with the Neuropathy in just one area. The answers were always “no, it is not what we thought” it was. So the doctor would come up with another test to see if it is that or not.

I had several MRI ruling out MS, Rheumatoid Arthritis, Head, Shoulder or Neck Problems.

I had already started physical therapy because by now I was unable to raise my arm above my head.

When I was diagnosed with neuropathy, I thought that should be the end of the suffering but there is much more to come in the next chapter.


Florencetine Preston
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